Data Collection

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Among the more than 51,000 participants in the study, data are collected from more than 21,000 people through telephone interviews, referred to as the Tracking assessment. The remaining 30,000+ participants provide data through in-home interviews and data collection site visits, referred to as the Comprehensive assessment. All participants were also contacted by telephone 18 months after each full telephone or in-home interview to complete the Maintaining Contact Questionnaire (MCQ), which included some additional data collection.

Data Collection Tools

Below are links to all of the questionnaires used by CLSA since it began data collection in 2011. 

Baseline

Telephone interview - (60 minutes, data collected from September 2011 to May 2014)
Telephone interview - (30 minutes, data collected from September 2013 to December 2015)
In-home, face-to-face interview - (90 minutes, data collected from May 2012 to May 2015)
Data Collection Site visit interview - (2.5 hours, May 2012 to May 2015, including Contraindications, Neuropsychological Battery and Disease Symptoms)

First Follow-up

At this stage of the study, all of the data collection that was part of the MCQ during baseline was merged into the full telephone and in-home interviews.

*** Please note that we are updating the first follow-up questionnaires for download and will post the remaining questionnaires as soon as possible. Researchers, trainees or approved data users who wish to access these questionnaires are asked to e-mail access@clsa-elcv.ca.

Telephone interview - (100 minutes, data collected from December 2015 to December 2018)
In-home face-to-face interview  - (100 minutes, data collected from July 2015 to July 2018)
Data Collection Site visit questionnaire - (2.5 hours, July 2015 to July 2018)

For a list of physical assessments conducted at the DCS, click here.