Please refer to Section 5.3 of the CLSA Protocol, available under Protocols within Researcher Resources.
CLSA data holdings at provincial data centres will be limited to alphanumeric data, including questionnaire data, biomarker data, and select physical assessment data.
Administrative health data holdings may differ across provinces. Please refer to DASH, or the appropriate provincial data centre to learn more:
- British Columbia: Population Data BC
- Ontario: ICES
- New Brunswick: New Brunswick Institute for Research, Data and Training (NB-IRDT)
- Health Data Nova Scotia (HDNS)
To access the data, researchers will be required to apply through Health Data Research Network (HDRN) Canada’s Data Access Support Hub (DASH). DASH provides information on the availability of data assets, common algorithms, and data access processes across Canada, and offers centralized and coordinated data access support for researchers who require administrative data from more than one province. As of 2024, linked CLSA data are available for access in British Columbia, Ontario, New Brunswick, and Nova Scotia, as per data access policies of participating provincial data centres and the CLSA.
Researchers who do not wish to access provincial administrative health data should apply for CLSA data through the regular CLSA Data Access process.
The CLSA data access fee is $3,000 CDN. Additional fees are required by the provincial data centres to access the linked administrative health data. Please refer to DASH or contact the appropriate provincial data centre for the full fee schedule.
Researchers should familiarize themselves with the User Responsibility Checklist and Data Dictionaries (CLSA data only).
Graduate students (Masters or PhD) enrolled at Canadian universities who wish to obtain the CLSA data for the sole purpose of their thesis, and postdoctoral or clinical fellows (limit 1 waiver per fellow) who wish to obtain the CLSA data for the sole purpose of their postdoctoral project, may request a fee waiver.
Fee waivers apply to the CLSA portion of the data access fee only.
The CIHR Catalyst Grants for the use of CLSA Data are not eligible for Fee Waivers for the CLSA portion of the data access fee.
Data access requests for linked CLSA data are reviewed by the CLSA, DASH, and the respective provincial data centre(s). The timeline for review depends on many factors, including the feasibility of the project and the number of jurisdictions involved in the request. Approved users should anticipate between three to twelve months between submitting their application and receiving access to the linked dataset. Applicants should consult the relevant provincial data centre(s) for more detailed information on anticipated timelines.
If you have additional questions about CLSA linked data, please contact linkage_lien@clsa-elcv.ca. For data access questions, researchers should contact DASH or the relevant provincial data centre for detailed information on the application process.
Periods of data collection for the Baseline assessments were as follows:
Baseline Tracking: 2011-09 to 2014-05
Baseline Comprehensive: 2011-12 to 2015-07
Maintaining Contact Questionnaire (MCQ) Tracking: 2013-09 to 2016-02
Maintaining Contact Questionnaire (MCQ) Comprehensive: 2014-05 to 2016-01
Periods of data collection for Follow-Up 1 (FUP1) assessments were as follows:
FUP1 Tracking: 2014-05 to 2018-12
FUP1 Comprehensive: 2015-07 to 2018-12
Periods of data collection for Follow-up 2 (FUP2) assessments were as follows:
FUP2 Tracking: 2018-06 to 2021-09
FUP2 Comprehensive: 2018-04 to 2021-09
CLSA is working centrally on strategies to link individual level CLSA data with data from health administrative databases across Canada.
In 2021, the Health Data Research Network Canada (HDRN Canada) and the CLSA announced a partnership to enable linkage of the CLSA cohort data with data held at provincial data centres.
As of January 2024, linked CLSA data holdings are available in select provinces. Please visit the Administrative Health Data section for more information.