The CLSA data are currently available to approved public sector researchers, with no preferential or exclusive access for any individual. The CLSA welcomes applications from graduate students and postdoctoral or clinical fellows who wish to use the CLSA data for their thesis research or for their thesis or fellowship research, respectively. For trainee applications (Masters, PhD, postdoctoral or clinical fellows), the primary applicant must be the supervisor and the student must be clearly identified in the Trainee section of the application. The primary applicant must hold an eligible appointment (continuing or term appointment) at an eligible institution that is able to uphold the conditions of the data access agreement, administer grant funds and provide Research Ethics Board approval.

Researchers are invited to submit data access requests using Magnolia, the CLSA’s online data access application system. Requests to access the CLSA data are reviewed by the Data and Sample Access Committee (DSAC). Please consult Researcher Resources, which includes the Data and Sample Access Policy and Guiding Principles, the CLSA protocol(s), the CLSA Data Collection tools and resources, and the information on the data access application process before preparing an application.

Currently the charge for partial cost recovery per application is $3,000 CAD for applications within Canada and $5,000 USD for international applications. This includes access to the Baseline, Follow-up 1, Follow-up 2, or all three datasets. Due to the additional work required to make some data research ready, additional fees apply for access to image files, raw data, and datasets that require more complex customization. Please see the table of additional fees under Data Access. The fees are payable for the retrieval and preparation of the dataset per approved project, not for each project team member.

Graduate students (Masters or PhD) who wish to obtain the CLSA data for the sole purpose of their thesis, and postdoctoral or clinical fellows (limit 1 waiver per fellowship) who wish to obtain the CLSA data for the sole purpose of their postdoctoral or clinical fellowship project, who are enrolled at Canadian institutions for their graduate degree, postdoc, or clinical fellowship, can apply for a fee waiver. This fee waiver only applies to alphanumeric data. Any additional data requested, such as images and raw data, have associated fees. The trainee fee waiver cannot be applied to CIHR catalyst grant applications. Canadian trainees working outside Canada but funded through a Canadian source are also eligible for a fee waiver. The request for a fee waiver must be checked in Part 1 of the CLSA Data and Biospecimen Access Request Application in Magnolia.

Yes. Please note that ethics approval is not required at the time of the application to use CLSA data, but no data or biospecimens will be released until proof of ethics approval has been received by the CLSA. Should your institution not require a full ethical review for the use of de-identified data, please provide a letter from your Institutional Review Board to this effect. Ethics approval must be obtained only from the primary applicant’s institution, not from all of the institutions of the members of the project team.

Once you submit your CLSA Data and Biospecimen Request Application, you can track the progress of your application through Magnolia, the online application system. Once you have begun the application process, it is your responsibility to check your email (including your folders for junk, spam, etc.) for notifications from Magnolia. You may be contacted by the Data Access Team, if additional information is required. You will be notified about the approval status of your application approximately three months after the submission deadline. If your application is approved, a CLSA Access Agreement must be negotiated and signed between McMaster University and your institution. This part of the process can take a variable length of time (up to an additional three (3) months) and is not under the control of the CLSA. You will also need to provide evidence of ethics approval for your project, if you had not done so within your initial application. Please be aware that these steps may affect the length of time that it takes for the data to be released to you. Once all parties have signed the CLSA Access Agreement and proof of ethics approval has been received by the CLSA, your data will be released within 10 working days. Please note that the release of additional data (images and raw data) will require more time (one to three months, depending on the request). When planning for your project, you must include in your timeframe at least six (6) months from the application submission deadline to the time you receive your dataset.

At Baseline, 21,241 participants were enrolled in the Tracking cohort and 30,097 participants in the Comprehensive cohort for a total of 51,338 CLSA participants.

The 30-minute Maintaining Contact Questionnaire (MCQ) interviews with additional health-related questions were completed approximately 18 months after the initial Baseline data collection. A total of 19,052 Tracking participants and 28,789 Comprehensive participants completed the MCQ. The indicator variable ADM_COMPLETE_MCQ is included in the dataset to indicate those participants who completed the MCQ.