The Canadian Longitudinal Study on Aging (CLSA) is a Canada-wide study that looks at health and aging over a 20-year period. People between the ages of 45 and 85 were recruited between 2010 and 2015 to take part. The study team collects a wide range of information about people’s health as they age, including physical, emotional and social health functioning, as well as the presence of health conditions and diseases. CLSA participants fall into one of two different groups. Some people participate by telephone interview, while others participate in an in-home interview as well as visit a Data Collection Site in their area.

In order to determine how people age over time, your ongoing involvement in the CLSA is critical. We recognize that as people age, they face situations that have the potential to affect their participation. For that reason, we offer flexible participation, meaning that we provide you with options that accommodate your personal circumstances.

Your participation is very important to us. The CLSA cannot replace participants who joined the study at the start. Choosing not to take part will impact the scientific results. Less information collected by the CLSA over time influences the quality of data available for researchers and decision-makers who develop the health- and social-care policies that affect everyone.

The CLSA is designed as a research platform to address a wide range of research questions related to aging and the factors influencing health outcomes in older adults. Researchers must apply and be approved to access the CLSA data. They must demonstrate that their proposed research aligns with the guiding principles of CLSA data access, including protecting the rights, privacy and consent of participants, safeguarding the confidentiality and security of the data, and using the CLSA research platform optimally for research that benefits all Canadians.

For example, researchers may study:

• What are the factors that affect how adults age?
• Why do some people stay healthy as they get older and other people develop health problems?
• What changing life circumstances do people face as they get older and how do they handle them?

Only a limited number of key CLSA personnel will have access to your identifiable information such as your name, address, telephone number, etc. This information will not be communicated to researchers applying to use CLSA data. Only designated CLSA personnel will be able to contact you for follow-up interviews and appointments.

Canadian and international researchers can apply to access your data.

However, the blood, urine or stool samples must be analyzed in Canada.

Private sector researchers will not have access to your individual-level data. However, they may be involved in certain research projects, in collaboration with academic researchers. Even through these collaborations, they will not have direct access to your data.