You will be told in a timely manner about new information that may be relevant to your willingness to stay in this study.

You have the right to be informed of the overall results of this research once the entire study is complete. As a person taking part in the main CLSA study, you have chosen if you would like to be sent regular updates about the study progress through electronic or mailed newsletters. The results of the CLSA Memory Study will be shared with all CLSA participants through those newsletters. Information about ongoing research, the research team, and general study results will be posted on the CLSA website.

Your rights to privacy are legally protected by federal and provincial laws that require safeguards to ensure that your privacy is respected.

If you consent to participate in the CLSA Memory Study, you do not give up any of your legal rights against the research team, the Public Health Agency of Canada, or involved institutions for compensation, nor does this form relieve the research team, the Public Health Agency of Canada, or their agents of their legal and professional responsibilities.

Each research ethics board has reviewed this study. The research ethics boards are responsible for ensuring that participants are informed of the risks associated with the research, and that participants are free to decide if participation is right for them. If you have any questions regarding your rights as a research participant, you may contact the Research Ethics Board associated with your Data Collection Site.

Frequently Asked Questions

Find answers to some of the most common queries about the CLSA.

What is the Canadian Longitudinal Study on Aging (CLSA)?

The Canadian Longitudinal Study on Aging (CLSA) is a Canada-wide study that looks at health and aging over a 20-year period. People between the ages of 45 and 85 were recruited between 2010 and 2015 to take part. The study team collects a wide range of information about people’s health as they age, including physical, emotional and social health functioning, as well as the presence of health conditions and diseases. CLSA participants fall into one of two different groups. Some people participate by telephone interview, while others participate in an in-home interview as well as visit a Data Collection Site in their area.

How is the study funded?

The CLSA is a strategic initiative of the Canadian Institutes of Health Research (CIHR). Support for the study has been provided by the Government of Canada through the CIHR and the Canada Foundation for Innovation, as well as the provincial governments of British Columbia, Alberta, Manitoba, Ontario, Quebec, Nova Scotia and Newfoundland and Labrador.

Additional funding for CLSA sub-studies has been received from the Public Health Agency of Canada (PHAC), the Weston Family Foundation, the Government of Canada’s COVID-19 Immunity Task Force, Juravinski Research Institute, McMaster University, the McMaster Institute for Research on Aging and the Nova Scotia COVID-19 Health Research Coalition.

I am a participant in the study. Why is my continued participation important?

In order to determine how people age over time, your ongoing involvement in the CLSA is critical. We recognize that as people age, they face situations that have the potential to affect their participation. For that reason, we offer flexible participation, meaning that we provide you with options that accommodate your personal circumstances.

Your participation is very important to us. The CLSA cannot replace participants who joined the study at the start. Choosing not to take part will impact the scientific results. Less information collected by the CLSA over time influences the quality of data available for researchers and decision-makers who develop the health- and social-care policies that affect everyone.

How will the information be used?

The CLSA is designed as a research platform to address a wide range of research questions related to aging and the factors influencing health outcomes in older adults. Researchers must apply and be approved to access the CLSA data. They must demonstrate that their proposed research aligns with the guiding principles of CLSA data access, including protecting the rights, privacy and consent of participants, safeguarding the confidentiality and security of the data, and using the CLSA research platform optimally for research that benefits all Canadians.

For example, researchers may study:

  • What are the factors that affect how adults age?
  • Why do some people stay healthy as they get older and other people develop health problems?
  • What changing life circumstances do people face as they get older and how do they handle them?

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